I went to the urologist today for my bladder disease (hence a toilet picture). The medical assistant who worked for my old urology physician assistant asked if I wanted a Parsons treatment. For those of you who don’t know, a Parsons treatment is a catheter up your.. pee hole and urine is emptied and medicine is put into the bladder. It is as painful as you imagine it being. Usually for two days after the procedure, I am in pain; high frequency and urgency and cannot pee very well. But after that it’s golden. For about two weeks. And then the cycle goes again.

Is this practical to do twice a month minimum? No. Have I done it for the past 6-7 years? Yes.

So today I see a male doctor and he ended up being smoking hot and young and I was then very happy he did not have to do the procedure on me. He said my urine looked good but I had a high pH level which usually indicates less pain and issues bladder wise. I told him I was on lithium and my other bipolar meds. He told me lithium is terrible for the bladder especially with how much I take.

I legit told him “I will shoot myself in the head without lithium”. I was laughing but he was not. He was like “well don’t do that….. shit!” He said he would not do anymore Parsons treatment because it’s very old school and only helps if it happens once a week which isn’t feasible. So he signed me up for pelvic floor physical therapy and put me on oxybutynin which is a bladder relaxant which should help with me peeing my pants all the time.

I have to get a cystoscopy at the end of April and it is super painful; I flared for a week after I had mine done before I received my IC diagnosis. This will check for ulcers and cysts in the bladder that can be biopsied or removed if need be. But I can forget about it for a while now.

I was with my mom (she was out in the car) and I waddled over there I was hurting so bad. When I got home I immediately hit my weed pen because I was hurting so bad. My mom went to the pharmacy for me to get my medicine which I took. With the weed and medicine daily, I was able to nap. I woke up around 8pm just nauseous as could be. I ended up puking my guts out, I am not sure if I overate because I was stoned or just a bad reaction to the medicine. All I know is that the meds wore off and so did the weed. So I am starting to hurt again. It’s ridiculous.

I wanted to go out tonight, but tonight had other plans. I should do my schoolwork while I am up but we shall see.

Take care of yourself and I don’t know who needs to hear this but go to your primary care doctor and get a check up. Tomorrow isn’t promised and we gotta take care of our physical and mental health!

much love,

Dani